So you’re going to Doernbecher Children’s Hospital. Over the years our family has been up there quite a bit and we have learned some tips and tricks that might help your family make the process a little smoother. Hi, my name is Lauren a nd I am married with two kids. I have a daughter who is 9 and a son, Bauer, who is 7. We live in Medford. Bauer was born with a Rare Chromosome Disease that resulted in Developmental Delay, a heart condition called Tetralogy of Fallot, low muscle tone, mild/moderate hearing loss, and vision issues. For the first few years of his life he ate through a g-tube. On the night Bauer was born we found out that he had Tetralogy of Fallot. We were told he would have to go to Doernbecher so he could have it repaired, but we weren’t sure exactly when. It ended up that he required his open heart surgery at three months old. It was a terrifying time, but we found great comfort from the doctors and nurses at Doernbecher. I think what I took away from
Families share their experiences living with disability.